Living with Dementia: Impact on Individuals, Caregivers, Communities and Societies

About this course: Health professionals and students, family caregivers, friends of and affected individuals, and others interested in learning about dementia and quality care will benefit from completing the course. Led by Drs. Nancy Hodgson and Laura Gitlin, participants will acquire foundational knowledge in the care of persons with Alzheimer’s Disease and other neurocognitive disorders.

Who is this class for: This course is aimed for health professionals and students, family caregivers, friends, and others interested in learning about dementia.

Created by:  Johns Hopkins University

• Taught by:  Nancy Hodgson, PhD, RN, FAAN, Adjunct Instructor

  Johns Hopkins University School of Nursing

• Taught by:  Laura N. Gitlin, PhD, Professor

  Johns Hopkins University School of Nursing

Level Beginner Language English How To Pass Pass all graded assignments to complete the course. User Ratings 4.3 stars Average User Rating 4.3See what learners said 课程作业

每门课程都像是一本互动的教科书，具有预先录制的视频、测验和项目。

来自同学的帮助

与其他成千上万的学生相联系，对想法进行辩论，讨论课程材料，并寻求帮助来掌握概念。

证书

获得正式认证的作业，并与朋友、同事和雇主分享您的成功。

Johns Hopkins University The mission of The Johns Hopkins University is to educate its students and cultivate their capacity for life-long learning, to foster independent and original research, and to bring the benefits of discovery to the world.

Syllabus


WEEK 1


About Dementia
In this module, we introduce learners to dementia. We present a socio-ecological framework for understanding the live experience of dementia and by which this course is organized. We discuss the global impact, pathophysiology, and stages of dementia.


6 videos, 11 readings, 1 practice quiz expand

1. Video: Living with Dementia: Course Introduction
2. 练习测验: Myth Buster Quiz
3. Video: Module 1 Introduction
4. 阅读: History of Alois Alzheimer
5. Video: Alzheimer’s Disease A Brief History
6. 阅读: World Health Organization Dementia Fact Sheet
7. 阅读: The Pathophysiology of Alzheimer's Disease and Directions in Treatment (OPTIONAL)
8. 阅读: Inside the Brain: Unraveling the mystery of Alzheimer's disease (YouTube) (OPTIONAL)
9. Video: Dementia-The Challenge of Diagnosis
10. 阅读: Alzheimer's Disease International: Diagnosis
11. 阅读: Alzheimer's Association: Recommendation to update diagnostic criteria
12. 阅读: The diagnosis of dementia due to Alzheimer’s disease: Recommendations from the National Institute on Aging-Alzheimer’s Association workgroups on diagnostic guidelines for Alzheimer's disease (OPTIONAL)
13. 阅读: Recommendations for the Diagnosis and Management of Alzheimer's Disease and Other Disorders Associated with Dementia: EFNS guideline (OPTIONAL)
14. Video: New Approaches to the Diagnosis of Alzheimer's Disease
15. Video: Global Impact of Dementia
16. 阅读: 2009 World Alzheimer Report Executive Summary
17. 阅读: Dementia: International Comparisons (OPTIONAL)
18. 阅读: Dementia Care in 9 OECD Countries: A Comparative analysis (OPTIONAL)

Graded: Week 1 Quiz
Graded: Dementia Rates in your Community

WEEK 2


Impact on the Person



In this module, we focus on the impact of dementia for individuals. You will learn about common unmet needs of persons with dementia as well as the impact of core clinical features such as behavioral and psychological symptoms. Also, you will learn ways to support quality of life of a person with dementia.


7 videos, 10 readings expand

1. Video: Module 2 Introduction
2. Video: Personhood
3. Video: Potential Interventions Across the Disease Trajectory
4. 阅读: Personhood
5. 阅读: Personhood in a World of Forgetfulness: An Ethnography of the Self-Process Among Alzheimer's Patients (OPTIONAL)
6. Video: Identifying and Treating Behavioral Symptoms in Dementia
7. Video: Support the Person with Dementia: The Role of Meaningful Activities
8. 阅读: Managing Behavioral Symptoms in Dementia Using Nonpharmacologic Approaches: An Overview
9. 阅读: Activities
10. 阅读: International Perspectives on Nonpharmacological Best Practices for Dementia Family Caregivers: A Review (OPTIONAL)
11. 阅读: Dementia: a public health priority (OPTIONAL)
12. 阅读: Importance of national plans for Alzheimer’s disease and dementia (OPTIONAL)
13. Video: Palliative Care to Manage End Stage Dementia: A Patient-centered approach
14. 阅读: Late-Stage Caregiving
15. 阅读: Alzheimer's Disease: Help for Caregivers
16. 阅读: Hospice Care for Alzheimer's
17. Video: Medication Use in Dementia Care
18. 讨论提示: Unmet Needs

WEEK 3


Caregiving and the Home Environment



In this module, we expand our lens to consider family caregivers’ needs. You will learn the psychosocial impact of caring for a person with dementia and the role of stress. We provide examples of how to reduce stress, use the physical environment to support care tasks and well-being, and examine the potential role of technologies to improve dementia care.


7 videos, 12 readings expand

1. Video: Module 3 Introduction
2. Video: Living with Dementia as a Family Caregiver
3. 阅读: Caring for a person with dementia
4. 阅读: Dementia with Agitation (YouTube video)
5. 阅读: Rabins on Research: Is Alzheimer’s disease genetic? Do my children have to worry? (OPTIONAL)
6. 阅读: Late stage dementia home care: a caregiver from India shares her experiences (YouTube) (OPTIONAL)
7. 阅读: Extended Interview with Alzheimer's Caregiver, Ric Gomez (YouTube) (OPTIONAL)
8. Video: Psychosocial Processes in Families Managing Dementia: The Stress response
9. 阅读: Stress Process Model for Individuals With Dementia
10. 阅读: Impact of the disease (OPTIONAL)
11. 阅读: Cultural Values and Caregiving: The Updated Sociocultural Stress and Coping Model (OPTIONAL)
12. Video: Using the Physical Environment to Support Quality of Life: Psychosocial environmental processese
13. Video: Home Safety - Part 1
14. Video: Home Safety - Part 2
15. 阅读: Correlates of quality of life for individuals with dementia living at home: the role of home environment, caregiver, and patient-related characteristics
16. 阅读: World Alzheimer Report 2013 Journey of Caring (OPTIONAL)
17. 阅读: Environmental Perspectives on Ageing
18. Video: Summary and Future Challenges: The Role of Technology
19. 阅读: Assistive technology - devices to help with everyday living

Graded: Case Study Quiz
Graded: Environmental Safety Checklist Assignment

WEEK 4


Module 4: Community Level
ln this module, we examine the community level. We discuss how the interprofessional team plays a key role in providing comprehensive dementia care. Also, we examine the concept of dementia-friendly communities and provide some examples from around the world.


4 videos, 5 readings expand

1. Video: Module 4 Introduction
2. Video: Assessing the Role of the Home and Community Environment in Supporting Families Living with Dementia
3. 阅读: Improving Quality of Life in Individuals with Dementia: The Role of Nonpharmacologic Approaches in Rehabilitation
4. 阅读: List of Alzheimer associations
5. 阅读: 8 Pillars Model of Community Support (OPTIONAL)
6. 阅读: Dementia Care & Support (OPTIONAL)
7. 阅读: Dementia care in developing countries: The road ahead (OPTIONAL)
8. Video: Dementia Friendly Communities
9. Video: Using an Interprofessional Approach to Dementia Care
10. 讨论提示: Health care team particpation

Graded: Dementia Friendly Community Checklist Assignment
Graded: IPE Quiz

WEEK 5


Module 5: Society at Large



In this module, we provide an overview of national plans and policies. We identify elements of key plans and review the impact of such plans from a global perspective. You will also have the opportunity to develop an action plan that addresses an unmet need that you identify either in your home, community, or place of work.


4 videos expand

1. Video: Module 5 Introduction
2. Video: Overview of National Plans and Policies
3. 讨论提示: National Dementia Plan
4. Video: Action Plan Assignment
5. Video: New Ways for Better Days

Graded: National Plan Quiz
Graded: Action Plan Assignment